Patient and Caregiver Perspective
Patient journey, caregiver needs, and psychological aspects of AM
4 articles
- What Every Pediatrician Needs to Know about the AM Patient’s JourneyRecorded Webinar (AM-EU-S1-M4) Dr. Christina Lampe
- Alpha-Mannosidosis Understanding Patients’ Needs - Caregivers’ Survey Insights for PediatriciansRecorded Webinar (AM-EU-S2-M3) Dr. Monica Lopez & Ms. Sophie Thomas
- Optimizing Outcomes & Exploring Psychological Aspects of Alpha-mannosidosisRecorded Webinar (AM-EU-S3-M3) Dr. Julia Hennermann & Dr. Sarah Haupenthal
- Alpha-Mannosidosis: Illuminating the Patient VoiceRecorded Webinar (AM-US-S2-M2) Dr. Nathalie Guffon, Prof. Can Ficicioglu & Dr. Christina Lampe