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How Your Data Contributes to Research

Written by Mequel Bunch
Updated over 3 weeks ago

When you choose to share your health data for research through Citizen Health, you help advance medical research and develop better treatments.


What Happens to Your Data?

Your data helps researchers:

  • Understand disease patterns and progression

  • Evaluate treatment effectiveness

  • Design better clinical trials

  • Answer important questions about care

  • Support development of new therapies

Your privacy is protected:

  • All data is de-identified (no name, address, contact info)

  • Researchers are prohibited from identifying or contacting you All research is required to be done consistent with independent IRB rulings

  • You can revoke consent and stop sharing for future research at anytime


Who Uses Your Data?

  • Academic researchers

  • Pharmaceutical companies

  • Patient advocacy organizations

All must:

  • Be done consistent with independent IRB rulings

  • Sign contracts protecting your privacy

  • Use data only for approved research

Enable consent:

Profile β†’ Research Consent β†’ Toggle On

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