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End of Life Care – What You Must Do (Live-In Carers)

Providing end of life care in someone’s home is a privilege. It is also a responsibility. This guide explains what to do and what to look out for.

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Written by Finn Tacon
Updated over 2 months ago

When Someone Is Approaching End of Life

You should have:

  • An End of Life Care Plan

  • DNACPR or ReSPECT information (if applicable)

  • Clear medication instructions

  • An escalation contact list

If you don’t — contact your Care Coordinator immediately.


Your Daily Responsibilities

You must:

  • Monitor pain and comfort levels

  • Check pressure areas regularly

  • Maintain mouth care and hydration

  • Record all changes clearly

  • Speak calmly and respectfully (even if they seem unconscious)

  • Maintain privacy at all times


What To Do If…

The person’s pain suddenly worsens

  1. Check medication plan.

  2. Administer prescribed medication if due.

  3. Contact District Nurse/GP if not controlled.

  4. Inform Care Team immediately.

  5. Document everything.


Family members disagree about care

  • Do not take sides.

  • Follow the documented care plan.

  • Inform the Care Team immediately.

  • If you feel pressured to withhold medication — this is a safeguarding concern.


You think death may be imminent

Signs may include:

  • Irregular breathing

  • Long pauses between breaths

  • Cool hands/feet

  • Reduced consciousness

You must:

  • Stay calm.

  • Ensure comfort.

  • Inform Care Team.

  • Follow escalation plan.


The person dies

  1. Stay calm.

  2. Confirm this was expected death.

  3. Call GP or appropriate clinician (as instructed).

  4. Inform Care Team.

  5. Support family sensitively.

  6. Do not verify death unless trained and authorised.

  7. Do not remove equipment unless instructed.

  8. Document time and circumstances.


You feel overwhelmed

This is normal.

You must:

  • Contact the Care Team.

  • Attend debrief.

  • Request support if needed.

You will not be expected to “just carry on.”


Lone Working Safety

If you feel unsafe at any time:

  • Leave the immediate situation if necessary.

  • Call your emergency contact.

  • Inform the Care Team.

  • Call 999 if there is immediate danger.

Your safety matters.


Professional Boundaries

You are there to provide care.

You must not:

  • Accept money or gifts

  • Become involved in disputes

  • Discuss other clients

  • Share personal opinions on DNACPR


Remember

Dignity.
Calmness.
Compassion.
Documentation.
Escalation.

If unsure — call the Care Team.

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