MPS Patient and Family Needs
Patient and family perspectives across diagnosis, care pathways, and daily life with MPS.
4 articles
- # The Role of Pediatricians in Managing the MPS Patient with Everyday Health IssuesRecorded Webinar MPS-EU2-M3 ( Dr. Simon Jones & Ms. Jane Roberts)
- # Understanding the Mucopolysaccharidosis (MPS) Patient and Family's NeedsRecorded webinar MPS-S5-M6 (Dr. Christina Lampe)
- # Psychological Care for the Child and Family with MPS DisorderRecorded Webinar MPS-EU2-M4 (Dr Stewart Rust)
- A Personal Perspective: Understanding the MPS Patient's NeedsRecorded Webinar MPS-EU2-M2 (Mr Oskar Ahlberg and Ms Michaela Weigl)